A burst of unexpected laughter came from the bedroom where Dad was propped up on his hospice bed, while he watched Wheel of Fortune with my sister Juliann.
Dad was a huge fan of Wheel of Fortune, which he called the Old People Show due to his belief that the elderly were particularly fond of it.
On this particular evening, Pat Sajak announced the puzzle category: Living Things.
A few correctly-guessed letters were revealed. And now it was anyone’s guess on how to solve the puzzle:
C _ C _ _ S _ L _ W_ _ S.
The contestants were stumped. But Dad, at age 84 with his cognitive acuity diminished, calmly announced to the TV:
“CACTUS FLOWERS”
This caused my sister to howl with laughter, which I could hear from the kitchen. When she told me what happened, I laughed so hard I cried a little.
I know this is potentially a “you had to be there” moment to understand why this was so funny to us, particularly since we were anticipating the end of Dad’s earthly life. But in those weeks, as Dad’s condition weakened, ridiculous things like “cactus flowers” had a mysterious way of pushing back the clouds of chaos and confusion.
There were dozens of moments like that in Dad’s final weeks on earth, moments that helped us remember that we were not alone in our stories or our grief.
It happened when we opened up old photo albums to find our shared stories in grainy photographs.
It happened when we played some of Dad’s favorite songs like “Peaceful, Easy Feeling” or “You Were Always on My Mind,” and he would strum his trusty air guitar.
It happened when we whispered reassurances to one another about the realness of heaven and the hope of our faith, a faith passed down to us from our parents.
When Dad was placed on hospice months earlier, we four siblings spaced out our visits so we could cover as many days and nights as possible. But as Dad’s health continued declining, we found ourselves overlapping our visits on purpose.
A few days after the cactus flowers incident, Juliann told me, “I can do this so much better when we are here together.”
I responded, simply, “Me, too.”
One day, I learned a new word that helped me see why that was true.
It happened while I was listening to an audiobook, The Lord is My Courage, on the way to my parents’ house. The book had become my faithful companion on those trips. I loved listening to the book on audio for two reasons. 1) I could feel the energy in the author’s voice. And 2) The author, K.J. Ramsey, is my friend. It brought me comfort to have K.J. as a “passenger” in my car during the hardest season of my life.
That day, K.J. uttered a word that illuminated something for me. The word: “co-regulation.” I had heard the term before but hadn’t paid much attention. But now, it was a word that asked for examination.
K.J. helped me understand that co-regulation happens when two autonomic nervous systems slide up next to each other. Co-regulation is how we offer comfort with a warm, responsive presence.
After hearing K.J. talk about co-regulation, I immediately sent her a message on Voxer, telling her what my sister and I had talked about – how we felt better when we were together.
“Is this a kind of sisterly co-regulation?” I asked.
She responded, “That 100 percent is sisterly co-regulation!”
For the next several days, I paid attention to the palpable difference when I was in the presence of a co-regulator. Our family even joked about getting T-shirts with the word “Co-Regulator” on the front.
I’m not exaggerating when I say that this revelation was life-changing for me, because it taught me that this – this! – is the energy I can bring into a room, any room, for the rest of my life.
I could come into a room not as a fixer, advice-giver, critic, or anything other than a person who offers safe harbor to another soul.
This is the way of Christ, who divinely embodies co-regulation. He is the warm and responsive presence who companions us in our storms. He is the Comforter who brings calm to our chaos.
Jesus also calls us to co-regulate with one another. Paul writes that we are to “bear one another’s burdens, and so fulfill the law of Christ” (Galatians 6:2, ESV). The word burden refers to a load that a person couldn’t carry alone. Co-regulating not only lightens the load for others, it also serves to “fulfill the law of Christ.”
We co-regulate by praying, showing up with food, and being comfortable with someone else’s need for silence. We co-regulate through a listening ear, a meaningful conversation, a hearty laugh, or an inside joke about Wheel of Fortune.
Dad has now promoted to glory. I wonder often how Jesus was a co-regulating influence for Dad as he moved from this life to the next. I also have become more aware of the co-regulating influences in my life, and how I want to be the kind of person who offers that gift to others.
We don’t have to complicate it. Sometimes co-regulation takes the form of a text message, like the one I sent to my sister on an especially hard day. The text held two simple words that I knew would make her smile:
“Cactus flowers.”
Written in honor of one of the kindest co-regulators I’ve ever known, my dad, John Philip Dukes, October 25, 1937—September 4, 2022.
By Jennifer Dukes Lee from the (in)courage archives.
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Thank you for sharing your story and experience with being co-regulators. I’ve not heard this term before. It has opened my eyes to see the need for co-regulators, and I want to be one of them. Thank you for this encouraging message.
This brought tears to my eyes at the end..i needed this encouragement more than you know. Thank you!
I can’t tell you how much I needed this and I love this new word…”co-regulator.” My sister and I are both in this season of change with my mom. I never thought of her as “old.” She will be 82 in Oct.
My mom, my sister and I have officially decided she’s “old,” and I am as well, albeit I’m 56. It seems rude but it makes us all laugh, similar to “cactus flowers.”
My deepest condolences of your father. Thanks for sharing this story.
Blessings
Teary too! You talked about co-regulation at Glen Eyrie. Love hearing when the word became meaningful to you. And how comforting that God is “the warm and responsive presence who companions us in our storms.” You’ve described it so beautifully, Jennifer!
Back in May I awoke & could not see. The Lord orchestrated exams & treatments by emergency eye doctors & specialists that have restored some of my sight. The first MD to examine me gently & calmly said “this is really bad. I hate this has happened to you. I wish I had better news.” While his words were not good news in any way, shape or form, his demeanor kept me from being frightened or worried. A friend told me he had been a ” non-anxious presence” when I needed it most. I like the term co-regulator even better. May we all be that co-regulator, non-anxious presence to our hurting world because Jesus enables us! Blessings (((0)))
This is so beautiful. What a great portrayal of the relationship God the Father, Son and Spirit created for us. He wants us to be in community with Him and with each other. I don’t know how I would be able to do life without Him and without those He’s set me in relationship with. I’m spending the day with two of my co-regulators, sisters not by blood, but by choice, who God has sweetly blessed me with.
Dear Jennifer…….Your words today taught me something that I was not aware of ” co-regulators “. I loved the way 2 words from Wheel of Fortune “cactus flowers”. It was so uplifting as your story continued. I went through this when my father was so sick and there was nothing that could be done. He was 58 and I was 23 and crushed. The last time he left our house for the hospital, my mother was devastated. As we drove to the hospital, I didn’t know how or what I could do for him. He was in a coma. When we got there we were all talking to him, hoping that maybe he might hear us. I grabbed his hand and he squeezed it which brought tears to my eyes. My mother said, you have the magic touch. I do believe that it was my Holy Spirit that nudged me to take his hand and somewhere in my Daddy’s mind he knew that, as he was an active Christian and had told us that he was not afraid. Thank you, as usual, the (in)courage women have taught me something and have started my day with a smile. God Bless you and your family for what you did when your father was facing the next step in his Eternal Life. It was truly joyful at the end. Love to you, Jennifer……………….Betsy Basile
Thank you for sharing this validating insight I didn’t know I needed. I was concerned that my random co-regulating with people might be misunderstood when really I’m just realizing the importance of letting people know when I’m thinking of them. We never know when kind words might be a last opportunity to share them.
This is lovely. Reminds me I don’t have to “fix” things. I am often called just to be present.
JDL, this brings tears to my eyes. As a griefshare class facilitator, I will embrace this when our groups gather. With my friends and my family, I’ll embrace this. I desire that the Lord make me a ‘safe harbor.’ Thank you for sharing these sweet memories of your daddy; they are balm to our souls, aren’t they?
God’s blessings on you and yours!
Jennifer thank you writing today devotion. My Dad is 84 with the start of Dementia. Days worse than others. But not saved. Not even bothered just lives on day at time. Before he took Dementia he always believed when you die your nothing. Knows I am saved. Said to me before being diagnosed with Dementia. Glad you believe that stuff. Alway knew I prayed for him. But I have had my moment when my energy not being of Jesus. Even though I not say the days I have it when going to do my Dad’s house Monday to Friday. As days as we are all human. My Dad not that good. Then I got that my patience is about to run out with my Dad. I have to bit my tongue to stop me saying something to my Dad. As when he distressed he can’t do something for himself. Will not let you help him . You have too as for his own good. I can understand we’re my Dad coming from. As he was such a an independent man. That did everything for himself. No can’t most things for himself. Get annoyed does like you at times helping him. You have to hang real patience at all times. Not trying as you sent to be a critic or not as fixer. But having the energy and love of Jesus. That you give the energy of Jesus in everything you do. God has said to me as times I want to walk away let someone else do it. As when Dad gets in mood doesn’t understand what he is doing and you got to help he will not let you. You have to real patience with your Dad. God has said to time and time again Dawn I want you to stay to teach you to have that. It hard. To show my love to your Dad. You give of the aroma of the energy of Jesus to your Dad in everything you do for your Dad and in my love God told me. Jesus I know had to have alot of patience with people in his day and give that energy of the Father love were ever he went to one and all. It wouldn’t have been easy for him. Like the song How deep the Fathers love for us fast all measure. We that are saved have to display the energy and aroma of Jesus every were we go. To saved and not saved. Love by God word out in our lives. Times it will be challenging but with God’s help we can do it. So people see that love in us that of Jesus. Love Dawn Ferguson-Little Enniskillen Co.Fermanagh N.Ireland xx
Jennifer one last we thing. It good for you and the rest of your family. To know you have good memories of your Dad in your heart to keep even though not got him on earth. You all have something to look forward to that is you will all see your Dad in Glory one day. You all will be together again. I want nothing from my Dad when leaves earth one day. Just to know before he goes he saved I will see him in Glory one day. I had that for years even before he was diagnosed with Dementia. Love Dawn xx
Thank you, Jennifer, for this devotional. It’s so true about co-regulators. I wish and pray I had more in my life. I’m going through a very hard time after losing my Mom. I also would like to be a co-regulator to those I know are hurting. It’s a tough world and easily to get discouraged. I am thankful for God’s word and Spirit. I pray we are more aware of what’s around us and right in front of us. I know what it feels like to be overlooked and forgotten. God Bless you and your ministry and sharing God’s love.