When our daughter was about three years old, I worked up the courage to verbalize what I had been thinking for quite some time: She was different. I had a nagging sense that something was off. She wasn’t walking. She skipped crawling and would bounce on her knees across the room (It was as strange as it sounds!). I ached when I heard other toddlers forming beautiful little words, like mama or dada, while she remained silent. I asked our pediatrician if this was normal, and he said she was probably just delayed and that her big brother did the talking for her. But still, as time went on, that nagging sense stayed there in my mind and heart.
When she turned four, I finally got her evaluated after tons of paperwork and searching for someone to take me seriously — “I know she looks fine, but it’s not fine. Something is wrong.” It turned out she couldn’t hear for the first several years of her life. After we fixed the hearing, I thought we’d get back on track for “my plan” for her life to move along. However, when her language did not arrive, the long, tiresome journey of advocating for our daughter and early intervention was just beginning.
Over the course of my life, I’ve found myself in many uncomfortable situations where I’ve had to sit in the discomfort of events in my life not going as planned. You know that song we all like to belt out as if we’re the next big American Idol star? Take me deeper than my feet could ever wander . . . wherever You might lead me. It’s fun to sing, but not as fun to live. Do we really want to be taken so deeply into the unknown, even if it’s painful and uncomfortable and we might lose some things along the way? If I’m honest, I’d rather sing the song than live the song.
But that’s not the call of the faith we profess. We often can’t understand what God is doing, but we are called to trust that He knows better and will work it for our good. We may know that in our heads, but God wants to capture our hearts instead. And that often happens when life is interrupted.
“For my thoughts are not your thoughts,
neither are your ways my ways,”
declares the Lord.
“As the heavens are higher than the earth,
so are my ways higher than your ways
and my thoughts than your thoughts.”
Isaiah 55:8-9 (NIV)
There was a time (or seven) in our journey with Lila where I thought I could fix her with the newest therapy, the greatest miracle supplement, or perhaps if I prayed hard enough. But as I mature in faith, as I walk this road further, I have since stopped believing that if she were more “normal,” she would have a better life. My perspective, as I lean on His higher ways, has changed from needing her to be healed to believing that God is showing me something about Himself through all of this. He didn’t make a mistake when He weaved her genes together, when He knitted her, when He gave the word to make her just so. This leads me to believe He is showing a part of Himself through her, something I didn’t want to see at first.
But now I know deeply from watching her boundless joy and her intense happiness for others as she watches them open a gift and cries with joy. She jumps up and down. She hugs them, as if she were the one receiving it. Give me joy like that! She walks down to the neighbor’s house and asks them, with intensity, “And how was your day?!” — all because she really wants to know. Give me others-centered awareness like that! She wants to pet every dog, wants to know their name and what their favorite treat is, and she laughs hysterically at their features. “That weiner dog is smiling at me!” Give me the ability to find joy in the simplest things like that! She sings off key at the top of her lungs, and it is sometimes accompanied by a squeaky recorder, which has us all laughing so hard we cry. Give me a joy so contagious like that!
And I almost missed out on it by wishing my circumstances were more “normal.” The rest of the verse above continues on:
So is my word that goes out from my mouth:
It will not return to me empty,
but will accomplish what I desire
and achieve the purpose for which I sent it.
Isaiah 55:11 (NIV)
So here’s what I’ve come to trust: Every circumstance is tailor-made for me, given to me by a good God, who refuses to let His good Word return empty. My life and its interruptions will accomplish His purpose for His glory and my good. And perhaps, once we start believing this to be true for us all, we can open our white-knuckled grip and receive a better gift than we could imagine: Himself. It was never about our circumstances. It was always about Him.
Leave a Comment
Ruth Mills says
Circumstances tailored to reveal more of Him to me, indeed! I needed to read this this am! Thank you! Instead of wringing our hands over the heightened tension in our community right now we can be asking God what He wants us to know, learn & share with others about Himself in this drama. Focusing on Him rather than the angst we wish was behind us! Thank you again!
Jami Nato says
Yes! Peace is a Person!
Rita says
Jami,
Tears…this is perfect for me during a difficult time.
Thank you!
Jami Nato says
Praying for you now!
Catherine says
All I can say is, thank you for sharing with us all. This has changed my perspective on the problem my family has faced for the last 1 year.
Praise God. He is so so good and I shall sing His glory forever
Jami Nato says
Oh I’m so happy this is helping you. I sometimes wish someone had wrote this for me early on so it’s a blessing to have some hindsight and help others on their journey!
Gail says
Thank you for sharing your story. What a beautiful child God has given you!
Ann Woleben says
Thank you for sharing your personal journey and life lessons. I like your term “tailor-made for me.” It reminds us that we must trust in God’s plan and purpose for our individual lives. Blessings to you and to Lila~
Jami Nato says
how quickly we forget tho!
Arnesia says
I just want to say how much this blessed me. In the beginning it reminded me of my son who has a language impairment and some delays due to not hearing at a young age, that we didn’t know either. As I began to read further it reminded me of my other son who has special needs too, due to GBS meningitis at 3wks old. Although he is visually impaired and has other health issues the joy he has is remarkable!! I’ve never seen anything like his spirit before. The joy he has draws so many people to him. So, I believe the Lord wanted to remind me that He sees them, He sees this mama’s heart, and He’s been with us from the beginning and through it all. Last but not least, Isaiah 55:8-11 is one of my favorite scriptures and the one He’s used through the years to remind and keep me grounded, especially pertaining to my boys, and the many questions I’ve asked and continue to ask about the detours and interruptions in my life.
Thank you!!
Jami Nato says
SO so sweet, they are such good gifts from the Father.
Barbara M Mills says
I cried when I read this. It hit me square between the eyes, or like the sweet sword of truth piercing me. Right in my heart. So long, too long, I have held things, people to some ridiculous standard.
Mercy though is so sweet when we relinquish that grip. Praise God.
Thank you for opening your heart and sharing this.
Jami Nato says
I’m so glad this helped you. I totally understand this breaking point. It is so sweet to let go!
Irene says
Jami, this is lovely! You hit every “note” perfectly. You reminded us that, although our lives may not unfold as we envisioned, God’s plans are perfect for us. And our mission is to accept our assignment and learn to celebrate it! Well done!
Jami Nato says
You bless me! thank you!
Janet Trenda says
Thank you for sharing your beautiful story. I was blessed by the stories of your beautiful daughter- and your journey of faith to ‘see’.
Jami Nato says
He has been so kind to me!
Amy Harper says
Loved this! Thank you for sharing.
Jami Nato says
You bless me!
Melissa says
After begging and pleading with God to heal my broken marriage, it ended in divorce. Not my my plan or how I wanted it to end. The healing process post divorce is extremely hard and painful. I feel rejected and damaged. AND YET GOD has met me in my darkest place, is with me and leading me in the healing process. He has shown himself faithful, true, and kind. This may not make sense, but all the pain and heart break is worth it-to experience the love of Jesus as I never have before.
Jami Nato says
he is near to the brokenhearted and saves those crushed in spirit. his nearness is our reward, not the marriage. Ugh, I had to learn that the hard way too but what a glorious lesson!
Terry Law says
That was so “in-couraging”! God bless you on your journey with God and your daughter. And yes, we need more joy like that! Hugs
Marian Frizzell says
Yes and yes and yes. The best gift he has to give is always himself.
Jami Nato says
I quickly forget!
Leslie says
Beautifully written – I needed these words. Lila sounds very much like my daughter and your journey sounds so similar to mine. It’s taken me years to finally let go of trying fix her and praying for healing and trust the One who made her knows better than me.
Jami Nato says
much love to you, mama!
Melissa Adair says
This is so so so so good. THANK YOU for this word & sharing this perspective. God bless Lila Nato who just inspired us all through her mamas amazing words.
Christine De Witt says
So beautiful ❤️ You are a gift to so many, thank you.
Jami Nato says
you bless me!
Scott Freeman says
Awesome word. My wife and I have experienced much with two adult autistic adults ( high functioning) thank you for your ministry. Thank you for sharing your story. It was a blessing to me.
Jami Nato says
Thank you Scott!
Beth Williams says
Jami,
I can so relate to this. I was the one born with two punctured ear drums. Couldn’t hear & didn’t speak till I was 3 or 4. Part of that was due to having three older sisters who spoke for me. Took speech classes all through high school & was shy. Still have a speech impediment. But that doesn’t stop me. After three operations my left ear wouldn’t take (not close up). Fast forward some years & I got a hearing aid to help me. Then one day at work I took out my hearing aid & forgot I didn’t have it in for a while & could hear fine. A NP look at my left ear & said the ear drum had closed up. God had taken His time & fixed it. Like your children I have a somewhat happy spirit. It has been a long journey, but worth it. I have compassion on those who can’t hear good.
Blessings 🙂
Jami Nato says
What an amazing testimony. Thank you for sharing that!
Vicki Whitman says
This is beautifully written- thank you for this post! We need to think of the blessing God has given us in these beautiful children!!!❤️