The symptoms had started slowly enough: headaches, muscle aches, and fatigue that seemed insurmountable. When their impact on my life became undeniable, I began the quest for answers. But it was only the beginning. In the months that followed, an entire cacophony of symptoms would replace the music of my life. My muscles grew fatigued after standing or walking. I had trouble swallowing, difficulty sleeping. I had tremors and numbness and tingling. Blurred vision made it difficult to work, and brain fog kept me in a confused haze many days.
A progression of life changes followed. I relied on a cane daily. For longer distances, I often needed a wheelchair. A chair lift was installed in our house so that I could reach our bedroom on bad days. I went from full-time work to part-time to not working at all. During flare-ups, I managed only two or three hours of mild activity and was confined to the couch or bed for what was left of the day. I missed out on bike rides, hikes, and basketball games with my kids in the driveway. Many nights I was too exhausted to leave the couch. I frequently cancelled plans with friends because I was too ill to participate. Conversations with my husband sounded more like medical team discussions than those of a married couple. And I grieved. I grieved deeply all the things that I’d lost.
There were no answers for all the tests and studies and doctor’s visits. No answers for nearly three years.
Inevitably, the waiting rooms became the spaces that shaped my faith. In those quiet, long moments, I was alone with God and the questions. There were so many questions. The waiting rooms were my desert, my place of wandering and testing and learning what it meant to believe that God was good.
I’d heard all my life about His goodness. “Taste and see that the Lord is good” (Psalm 34:8 NIV). I’d heard all my life that His plans for me, His purposes for me, were good. “I know the plans I have for you, they are plans for good and not for disaster, to give you hope and a future” (Jeremiah 29:11 NLT). I’d believed in His goodness, trusted in it, even encouraged others to remember it.
But in the waiting rooms, my God felt anything but good. I was angry and heartbroken and grieving. I felt deceived — after all, the plans unfolding in my life were anything but good. How could He promise goodness?
He could — if goodness didn’t mean simply good things.
I thought of my children, of my role as their mother. I knew that in order to be a good parent, I would have to let my children stumble and fall so they could learn. I would need to push them, to encourage them to grow. I would have to let them go through hard things — to avoid it would ruin them. I would need to walk with them, support them, teach them, and comfort them through difficult things. I would need to correct them at times. A child without discipline, without boundaries, without the opportunity to learn from mistakes is a child who is not thriving. There’s more to parenting than filling our kids’ lives with good things. This is the making of a good mother.
I thought of teachers. A teacher who fails to correct mistakes in math is not doing his students any favors. Neither is a teacher who never pushes the child, never teaches new things, never encourages the student to move beyond what is comfortable and easy into what allows them to grow and learn. This is the making of a good teacher.
So, what, I found myself asking, is the making of a good God? A God who spares me hardship and heartache? A God who only allows my life to be filled with good things, comfortable things? Why do I think a good God would be any different from a good teacher or a good mother? Where had I come up with the idea that God was only good if I was protected and sheltered and spared heartache?
That’s not the goodness of God at all.
Rather, God’s goodness is something much greater, much more beautiful. The goodness of God is a God who is unchanging, who never wearies (no matter how weary I am), who never slumbers. It’s a God who walks with me through the fire and water, never leaves my side, and wakes me each morning with the promise of new mercies. It’s a God who gently corrects me and guides me and who refuses to leave me in the messiness of my own wrong ideas and actions. It’s a God who has my wholeness in mind and not just my happiness. And wholeness requires growth — sometimes uncomfortable growth.
His goodness isn’t some kind of deceit. It’s not disappointed hope or misplaced trust. His goodness, instead, is a heart that has my very best — my very fullness — in mind. His goodness isn’t absent just because I am hurting. Actually, it’s more present than ever.
Our lives are full of waiting rooms: those solitary, heartbreaking places full of questions. We question God’s goodness. We question His heart. We question whether He can be trusted in our circumstance. But the God who is good in the easy times is the God who is also good in the waiting rooms of life, in the broken spaces. His goodness is so much more than just good things.
Michele Morin says
I’ve been reading Knowing God by J I Packer, and it’s expanding my view of the goodness of God. Good is such a bland word, and yet it’s the one God chose to communicate his attributes of kindness, caring, patience, and so much more. It takes a God sized goodness to wait with me, because when I am in the waiting room, I am a grouch!
Thanks so much, April, for leading this conversation into praise for God’s goodness.
April Barcalow says
You’re so right! Our understanding of the word “good” must be far different from his, since it’s the word he chose for himself. I’ll have to check out the book you mentioned–it sounds like a wonderful read!
Bev @ Walking Well With God says
April,
What a raw, honest, and beautiful post! So true that God is not “good” because he only allows good things to enter our lives. If life was composed of continuous laugher and feasting, we’d probably just ignore God (we are human after all). It’s when the rubber wheels of our soul meet the hard road called life, that we see what we are made of. On our own, we are but dust. With God, however, we learn to tap into a source of strength that is far greater than that which is found in our own self-sufficiency. It is when we crawl, bruised and broken, into our Abba Daddy’s lap and feel His arms of comfort around us, that we experience the true goodness of God. It is in the waiting rooms that we experience His furious love for us. Your post really touched my heart.
Blessings,
Bev xx
April Barcalow says
Thank you so much for your comment! I’m glad to hear it touched your heart. I think you’re absolutely right: when things go well we are far too prone to forget him. I love your reference to “furious love”–what a great description of the love he has for us!
Kelly Schmidt says
Amen!
Stephanie Bankhead says
What a beautifully written truth about our suffering and God’s goodness. This has been true in my life for a long time too. It’s a difficult but holy road to walk. Thank you for sharing with an open heart.
April Barcalow says
Thank you so much. I’m glad your experience has been the same. It is difficult, but our relationship with him is so much richer for having walked alongside him through these places…
Irene says
April, so beautifully written! Maybe because I am a nurse, I’m wondering what your diagnosis was. I know it’s secondary to your story, but still… I hope you are more well now or at least have tools to help you feel better. Love and blessings to you and yours!
Phyllis Swanson says
Irene, Like you, I am wanting to know if you are OK, what is happening now. I love your post, and other’s responses. This discussion would make an excellent ongoing Bible study. Maybe we should forgo the noun good and use ‘God’. I, too, have spent many seasons in ‘waiting rooms’ and was sustained with prayers and expectations that God would work all for good. God has never failed me. But, I really want to know more of April’s story.
April Barcalow says
Irene and Phyllis,
I love your hearts, and your concern for me! Thank you so much for asking about me. I did finally receive some answers: I was diagnosed with small fiber neuropathy and celiac disease. I continue to undergo testing as there seem to be some additional layers, but I am in much better shape now than I was several months ago. There will be some flare-ups along the way, and there are residual symptoms that I live with daily. But all in all, I’ve come a very long way and I am so grateful. This journey has taught me many things–not least among them, not to take health for granted!
Thank you both for writing and sharing how this story impacted you. I’m so glad we serve a God who doesn’t waste the hard places in our lives…
Phyllis Swanson says
Thank you so much for sharing your story. I hope you are well on your way to better health. I think they are only beginning to understand these vague illnesses. Some focus on diet and environment as I’m sure you’re aware of. I will be praying for you and your family. Phyllis
Trudy says
I, too, wondered if you now have a diagnosis, April. I’m so glad you finally have an answer. I hope and pray God will bless the treatments, and you’ll keep feeling better and better. I was trying to find if you have a website, and I came across your article – “What It’s Like to Live With ‘The Undiagnosis.'” Thank you for sharing your story. Do you have a website? Love and blessings to you!
April Barcalow says
Thank you! I have a blog that I write, everydayepic.blogspot.com . It’s not a polished site at this point so I didn’t share it in my bio, but you are welcome to read it! I’m thrilled you ran across my article with The Mighty. Love and blessings to you as well.
Trudy says
Thank you, April. I subscribed. 🙂
Dawn Ferguson-Little says
April I know what waiting is like. But it is behind me now thank goodness. This year three years ago in October I had to have hysterectomy. I didn’t mind because I knew I didn’t want kids. Don’t get me wrong I love them
just not brave enough to give birth. I was a Registered Childminder for 19 years. Love my Niece’s and Nephews. Had one not because of cancer. It was the only way I was going to stop my seizures. Which were caused due my periods as women. That made my homones go up the left throw me into seizures. God was good. I was not well years before my operation. I lost weight because of the amount blood I loose each month as well. On the day before my operation. I had so many people praying for me. Plus I read this saying the day before my operation. I don’t know we’re In got it but it was so true. It was. “I am not afraid of tomorrow because God is already there”. That is so true in it all God was all ready there. He the day of my operation took me through it. I was not scared. I went through it no problem. I glad as I only took one small seizure since my hysterectomy. It was the right thing I did. As with my seizures I got no woring I could have when I take them be talking to you the next take one. Next go into a seizures especially if my period was due. Or had it. The first time it happened I gave my Husband a fight. He never saw a seizure in in life. God has brought me to be were I am today. I am thankful to him for the people who God used to do my operation. Plus the Nurses that looked after me in Hospital as I was in Hospital 6 days. I don’t have any more seizures. Since that one small one months after my operation. I thank God for taking me through it. Giving me the strength to go through it. I can look back and see God’s goodness in it all. Yes I had to wait to get the operation done. But God taught me patients in the waiting. That everything works out perfectly in his timing. Yes the waiting was hard. As my family especially my late Mum and Husband didn’t like to see me in the waiting taking the seizures. As it broke there hearts. As you never knew if I was going to injury myself either in the seizures. As one time I did and I knocked my front teeth. That now I have implants. I said to them my family. It could be alot worse. I could have cancer and only months left to live. So that to God I am greatful for that. Plus everyday he have give me to be alive in his beautiful world. Like Psalm 118 verse 24 say. “This day the Lord has made let us Rejoice And Be Glad” so true that is so let us do that. As you say God is God in easy times and the God in the waiting times. I had to wait at least 3 years for my operation. I love today’s reading April. Love Dawn Ferguson-Little. Than you for it. XXX
April Barcalow says
Thank you so much for sharing your story. I can’t imagine how hard this journey was for you. It’s beautiful to hear you talk about how God’s presence and goodness were woven throughout all of the unknowns and challenges–sometimes through his Word, and sometimes through others. I’m so glad to hear you are in a much better place now health-wise. We are marked by these experiences, aren’t we? Like Jacob, after he wrestled with God. And yet, I think we walk away from them more whole and fully alive than we ever were before.
Thank you for your beautiful words.
Penny says
April.
Thank-you for sharing your touching story, and the truth of the beauty of God’s goodness. I am deeply touched by it, and sorry for what you.’ve been through.
Blessings to all,
Penny
April Barcalow says
I’m so glad my story resonated with you! I never cease to be amazed when God uses our experience to touch someone else’s life. What an amazing gift! I hope you are able to see His goodness in your circumstances, as well, even if it doesn’t look like you might have expected.
Blessings to you as well.
M @ In Beautiful Chaos says
Waiting is something I am all too familiar with, but I have seen His goodness even in the midst of it. I love how you said that “His goodness isn’t absent just because I am hurting. Actually, it’s more present than ever.” Everyday I am finding that to be more true, even though I might not like it all of the time. When I am questioning why He allows so much pain, I often think of all of the times that I have been encouraged by hearing or reading the stories of someone else who has gone through similar situations and struggles. They wouldn’t have those stories to share if they hadn’t gone through painful things, but their pain allows them to share hope and encouragement with others. Thank you for doing that with your story! I truly believe that even though it can hurt so badly at times, our pain isn’t wasted if through our suffering He allows us to be an encouragement to others.
Praise be to the God and Father of our Lord Jesus Christ, the Father of compassion and the God of all comfort, who comforts us in all our troubles, so that we can comfort those in any trouble with the comfort we ourselves receive from God.
2 Corinthians 1:3-4
Blessings,
M @ In Beautiful Chaos
April Barcalow says
Beautifully said! It’s often because of our pain–not in spite of it–that we have anything to share with one another at all. I’m so glad God uses everything in our lives, even the things we’d rather not go through. Thank you for commenting, and keep looking for his goodness!
Beth Williams says
April,
Thank you for writing such a raw emotional post. I was curious about your diagnosis. Read some of the replies & found out your answer. Will continue to keep you in my prayers for healing & more good days. God is good ALL the time. He is not to be used like a genie in a bottle to get what we want. Our God is there on our behalf all the time, especially in the waiting rooms, ER, & during all our trials. Jesus is our strength to see us through the tough waiting times. It is in those waiting times that we really get to know Jesus well. We pray more fervently & seek His guidance for a cure or end to the trial. We feel His strength & power come into our lives to build us up & heal our broken bodies. Each trial is another opportunity to run to His arms & feel His love flowing down to us. He shows us His fervent love by being there for us always.
Blessings 🙂
April Barcalow says
Thank you for your comment. You are so right! He certainly doesn’t waste our time in the waiting rooms…
Erica Baldwin says
“His goodness is so much more than just good things.”
These are the very lessons I’ve learned myself since my diagnosis almost 9 years ago of Vascular EDS. I write about it, too, and it never ceases to amaze me how God reminds me again and again that His goodness is found best in those waiting rooms. Thank you for sharing!
April Barcalow says
EDS can be such a challenging diagnosis to live with! I’m sure your road to diagnosis was very long too, and that waiting rooms have continued to be a part of your regular experience. I’m so glad you’ve found God faithful in those spaces! Thank you for sharing, and for continuing to point others to God’s goodness in your own writing.